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DESCRIPTION:The Chiari and Syringomyelia Foundation will hold its first a
 nnual unite@night walk from 6 to 8:30 p.m. Friday\, June 29\, in Beren&r
 squo\;s Park in Elmhurst.\n&ldquo\;This is wonderful news for our commun
 ity\,&rdquo\; said Jeanne Naples of Elmhurst\, mother of Melissa (16) wh
 o has suffered with Chiari malformation since she was 5. &ldquo\;Melissa
 \, and those like her suffer from debilitating symptoms that stop them f
 rom leading a normal life. With this walk in Elmhurst\, we will raise aw
 areness for this disease and help many who suffer from it.&rdquo\;\nThis
  event is a 1-mile casual evening walk bringing people together who are 
 suffering with the devastating effects of Chiari malformation\, syringom
 yelia\, Ehlers-Danlos\, hydrocephalus\, intracranial hypertension\, dysa
 utonomia\, autism and related disorders.\nThese disorders cause effects 
 such as excruciating head pain\, fatigue\, muscle weakness in the head a
 nd face\, nausea\, impaired coordination and in severe cases\, paralysis
 . Battling these symptoms mean a lifetime of pain for over 1 million Ame
 ricans. CSF has established unite@night walks to provide education and i
 ncrease awareness while funding research projects that are aimed to find
  answers to help those who are fighting these disorders.&nbsp\;\nAt the 
 age of 5\, Melissa was diagnosed with Chiari Malformation\, which causes
  her to have constant excruciating headache pain on a daily basis. The p
 ain impacts her life to such an extent that she is unable to participate
  in any physical activity and missed more than 50 days of school in 2012
 \, including finals\, and she has been hospitalized four times since Jan
 uary. To date\, there has been no resolution for her after years of endu
 ring surgical procedures\, innumerable medicine trials with life threate
 ning reactions\, and holistic approaches.\nMelissa and her family have b
 ecome involved with the national Chiari organization\, CSF\, and are now
  administrators of the unite@night walk to raise educational awareness a
 nd research all in hopes of finding a cure. The debilitating effects of 
 Chiari has made Melissa determined to help the millions of people who su
 ffer as she does.\nYou can join Melissa and other sufferers of Chiari at
  the unite@night event. &nbsp\;It will be a fun-filled evening with a DJ
 \, food\, activities and more\nIndividual or team participants\, sponsor
 s for individuals or team sponsors\, and corporate sponsors are welcome.
  To learn more about the Chicago walk site\, register for the walk\, or 
 become a sponsor go to http://csfinfo.org/node/305.\nChiari &amp\; Syrin
 gomyelia Foundation (CSF) is a 501(c) (3) non-profit organization built 
 on leadership\, vision and commitment to find a cure for Chiari malforma
 tion (CM)\, syringomyelia (SM) and related CSF (Cerebrospinal Fluid) dis
 orders was founded in October 2007.
URL:http://elmhurst.patch.com/events/elmhurst-chiari-walk-will-help-find-
 cure-for-chiari-malformation-related-cerebrospinal-disorders
SUMMARY:Elmhurst Chiari Walk Will Help Find Cure for Chiari Malformation\
 , Related Cerebrospinal Disorders
LOCATION:Berens Park: 493 N Oaklawn Ave\, Elmhurst\, IL
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